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The Power of Music


I try to stick to politics in this blog, since that's pretty much what we're all here for. Josh has given us a great, uncluttered place to speak our minds and I try not to abuse the privilege. But this particular entry is going to be a little different.

This is going to be a pretty dark trip; you may not want to take it. Fair warning. My apologies if you find it inappropriate or simply too dark to handle.

And yet, this is a story of hope. It's a story of sneering at the dark. It's a story of the indefatigable human spirit.

Okay, if you're still interested, read on below the fold. You've been warned.

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First off, there's nothing wrong with me. I wish it was me. It's my 18-year-old son. He was diagnosed with a virulent form of abdominal cancer the same week of the tsunami, in December 2004. Since then we have gone through unimaginable times of despair, hope and defeat, seeing the cancer go into remission, having it come back immediately, going back into the hospital. At this point he is receiving heavy radiation and chemotherapy at the same time, and it is taking a heavy toll on his young body.

He has had to watch these last few weeks as all his friends pack up to go to college. He's sitting in a very, very familiar hospital room in the pediatric cancer ward while his friends are off to college, blossoming into their adult lives.

I'm not going to lie to you. It's been nearly two years of a complete fucking nightmare, and it's not nearly over yet.

But oddly enough, this is a story of rising above all that. This is a story of hope. This is a story of incredible courage and a very real kind of victory.

My son and oldest daughter are very talented musicians and songwriters. Throughout the last year, a typical week would be my son spending Monday through Thursday or so in the hospital, coming home and recovering for a day, then off to play at one of the local coffee houses with his sister. They've achieved a certain amount of local success and have quite a loyal following.

They have used my little recording studio to produce a 15-song CD over the last two months. And no, I'm not providing a link; that isn't what this is about. What this is about is the fact that a boy who would have every right to be suicidally depressed never refers to his cancer. He races home from the hospital to spend hours and hours tweaking the songs, recording new parts, getting his sister's vocals just perfect.

When I see him in the hospital - which is every single day he's there - if he feels well enough to move, he's got his laptop open, working on their website, learning copyright law, and - perhaps most amazing of all - forming a local co-op of musicians to help them get their songs recorded.

Cancer? He has no time for it. He has a music career to get off the ground.

Music has been a friend to me from an early age. It has helped me get through some pretty rough times in my life. Right now, however, I feel silenced; I feel that the muse has left, maybe forever. Certainly until this nightmare is over. There is just no song in my heart right now.

But that's the burden of any parent with a sick child. The amazing thing - and what I'm terribly, terribly grateful for - is that music has been there for him during the most awful time in his young life.

It's a lesson for all of us. Someone asked me the other day if I was scared about something-or-other unrelated thing. Scared? I have looked into something far scarier than the face of personal death. Nothing on Earth could frighten me now.

That's something my son has taught me. I'm still trying to learn the other lesson: that human beings are, at the core, undefeatable.


10 Comments

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Too much, wasn't it. I'm sorry. Cheryl Crowe's interview about her cancer got me started.

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No, it's not too much.  I just don't have much to say, aside from expressing my sympathy and hopes for the best for you and yours.

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The cancer is dark but the story of you and your son is as good as it gets!! Thanks for telling a heartwarming story. 

Right now, however, I feel silenced; I feel that the muse has left, maybe forever... There is just no song in my heart right now.

Maybe right now your son is channeling your music.

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Anything I can say seems trite or just out of place, but I'll try...Thank you for sharing such a personal story. It was real and moving, and, yes, inspirational. My heart goes out to you and your family.

Your son sounds like an amazing guy...we should all be as brave and strong as him, when facing the worst that life can deal out.

Dissent Protects Democracy.

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Nothing on Earth could frighten me now.

Yeah, I too found that happened when I went through family member in life/death ICU for several months, and then going through years of dealing with subsequent ill health.

Not surprising either is your son feels driven to "follow his bliss." Not the same at all as the too-oft-stressed "doing something important with your life," my opinion, not at all. It's for the joy of it. One can carry it too far, because not everyone can make a good living doing something one loves, but still, it's best not to end up one of those people who say "I wish I hadn't spent so much time at the office."

Good luck to your son in his fight.

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Oh, that's not it at all. He has completely different plans when he can get out of the hospital. He got the top scholastic honors his high school could give and actually gave a speech at graduation. If he were well he'd be a freshman at Trinity right now. He's extremely ambitious and has the gifts and the drive to do anything he wants. One thing he's learned from his dad is that it's not impossible to do more than one thing with your life.

It's just that your options are limited when you are in a hospital bed 80% of the time; there aren't many things you CAN throw yourself into. I'm just grateful that his lifelong interest in music is helping sustain him.

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One thing he's learned from his dad is that it's not impossible to do more than one thing with your life.

well, he's already shown he's lucky, then (I have a dad that did that--it's a great thing. :-))

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Fervent passion for anything can offer hope and light to illuminate the dark. I have seen miracles, my nephew diagnosed with 4th stage Hodgkins did survive the treatments--it was as you say years of nightmare and agony--but he did survive. He's now married and a homeowner. Never give up hope and cling to your son's hope and take from it to enlighten your own life.

Prayers for the very best of everything to your son, you and your family.

Trudi

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(deleted)

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A virtual hug to you and your family.

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