Can We PLEASE Talk About Death?
I work as a nuclear medicine technologist in a medium-sized imaging clinic, and every day long-term patients come in to get various scans and procedures for their continuing care. Yesterday, for instance, I had 2 patients indicative of much of the long-term care patients: 78-82 y.o. men, conscious, w/ dementia, no verbal communication, and a laundry list of medical problems: severely contracted, diabetes mellitus, osteomyelitis of lower extremities, CAD, history of stroke, PVD, PEG tubes, wound vacs, MRSA, etc.
Not only would these patients never get "better," but their quality of life would never get much better. On top of that, they had no family to speak of--only as legal representatives. The family in these cases usually consists of a niece or nephew or cousin or another somewhat distant relation. The directive is usually the same: keep them alive for as long as possible (as long as we aren't paying for it).
The nuc med doctor takes a very cynical but practical view that these are the patients that are using the most money from the system and have very little positive output to society other than as medicare/Medicaid recipients. This, he says, is the primary motivator to keep cycling these patients through the system: to keep them alive (with family consent) so the various organizations can keep their lights on.
He's cynical, for sure, but he has a right to be: his own daughter was in a terrible car accident many years ago, right after graduating from a medical university as an MD, and now she is bedridden for life, and worse, unable to communicate. She requires 24-hour medical supervision, and this does not come cheap. The good doctor would have retired years ago if he didn't have to pay for her care out of his pocket.
His point is simple: if people paid for the long-term care of their family members instead of leaving it to the state, they would be forced to make the difficult decisions about life or death eventually. As it stands, for all the fears we have of the state making the difficult decisions about our elderly and infirm, the default position is to keep them alive for as long as possible without regard to their quality of life.
We are near the point at which we must, as a society, be able to talk about dying, death and quality of life of our loved ones--as well as relatives we barely know who happen to fall into our legal custody. As a culture, we will avoid this conversation at all costs. The real costs are the quality of life of the relative and the monetary costs that the rest of us must bear.
The short of it is that both patients I had yesterday deserve a deep evaluation of their quality of life-to-cost of care. However, we are still like children when it comes to this topic, unable to face the tough questions so long as we can pass the costs on to someone else. The people who lose from this failure are those whose health stands a chance of improving, yet cannot afford healthcare, patients who suffer their lives away alone in bed, and everyone of us as taxpayers.











