A Patients' Union
American Patients for Universal Health Care has announced it will form a “patients’ union” to organize patients across the country to “demand the quality of care for which they are paying and to demand meaningful health care reform.” Frustrated by what it sees as a perverse incentive structure that rewards health care providers for keeping patients just sick enough to need constant care, the organization is launching this union to empower patients to demand higher quality care and to encourage them to patronize only those doctors who support universal health care.
While this "unionization" could prove a powerful building block in the growing grassroots movement for universal health care, the very nature of healthcare presents huge challenges to those who would use market forces for change.
Even if this union gains widespread support, its members decisions on what doctors to visit won’t set in motion the market forces necessary to force doctors to provide better, more personal, more affordable care. Health care isn’t dry cleaning or car repair – patients can’t forego health care altogether, and demand will probably always exceed supply. Thus, consumers have little power to force suppliers to offer better service or risk falling profits. Further, the health care market offers limited choices: a patient considering doctors who take the right insurance, who are located a reasonable distance from work or home, who can provide the appropriate care, and who have an opening any time in the near future may well face fewer options than they face when selecting peanut butter at the grocery store.
This relative powerless of consumers underscores the need for government action. But right now we’re far from seeing the kind of government action needed to solve our health care crisis – particularly with even the frontrunners in the Democratic presidential primary likely to reserve a significant role for backers of the status quo in any healthcare reform. Insurance companies, doctors, and the pharmaceutical industry have powerful lobbies, while patients – who of course comprise a much larger percentage of the population – are largely un- or under-represented.
This may be changing. APUHC’s Patients’ Union reflects Americans’ mounting outrage with our health care system. With more and more Americans finding themselves without health insurance, the outrage will only grow – and outrage can motivate action. A Patients’ Union is a start. It can empower individual patients, further raise awareness about our system’s failings, and can induce doctors to announce their support for universal health care to gain the business of these union members, which will lend a trusted voice that could help legitimize and motivate the movement. With any luck, widespread demand for universal health care will help make change possible next November.

















Thank you, Kristin, for this excellent post. Among other things, I like it that you refer to those who use the health care system as "patients," not "consumers." (Except once when you refer to how the "powerlessness of consumers underscores the need for government action.")
Patients are not consumers (any more than health care is a free market) and we need to stop thinking of them that way. Health care is way too complicated for even the pros to understand it, much less ordinary mortals, and every encounter with the health care system serves to reinforce the strong resistance among ordinary mortals to ever having another such encounter. Do the champions of market forces think we lie abed at night longing to acquire type II diabetes so we can stick ourselves with needles every day and finally stop eating chocolate ice cream?
Health care costs are driven by drugs, chronic illness and end-of-life heroics. The life-cycle cost of chronic illness is dramatically increased when patients can't afford or otherwise don't use regular preventive and maintenance services, which they don't. If patients were consumers, they'd be standing in line before the doctor's office opens clamoring for their HbA1c tests, their statins, their well-child checkups, their innoculations, their mammograms, their asthma meds.
But patients don't act this way. If they did, the cost of health care would go down, because maintenance of chronic illness costs less than allowing it to get out of hand resulting in emergency room visits and repeated hospitalization.
Patients are not consumers. They avoid health care until they are driven to it by discomfort or fear. They can never be sufficiently well-educated about health care to make discriminating choices among providers and therapies and medications. When they are strongly motivated, they try to understand and follow their doctor's recommendations and instructions. When they feel better, they stop.
Patients avoid the health care system. How does that constitute consumer behavior?
September 4, 2007 8:18 PM | Reply | Permalink
While I admire this activism for reform here is my take-
Both individual and institutional prevention is our (and for that matter other nations') only way out of this economically unsustainable paternalistic and corrupt disease care system we currently have
I deeply admire the contributions of this patient's union but I urge it to embrace a prevention model
In 1995 I published a #6 point plan which Hillary liked
GROW UP AMERICA-A HEALTH CARE PLAN FOR MATURE AMERICAN CITIZENS
-Stop prolonging death. It’s both expensive and dehumanizing at best, greedy and cruel at worst.
-Empower US citizens to assume increased individual responsibility for health and convince medical consumers that it is in their best interests not to assume the role of helpless, dependent victims/patients.
-Face the reality that a very large percentage of illnesses, injuries and hospitalizations are entirely preventable. Subsequently, the elimination of tobacco, alcohol, drug and medication abuse alone could immediately reduce medical costs by a factor of at least fifty percent.
-Incent and train physicians to maintain the health of patients and populations.
-Rebuild US’ public health infrastructure to ensure a healthy environment, healthy workplaces and response to manmade or natural catastrophes.
-Recognize that early childhood preventive medical education can profoundly affect lifelong health behaviors.
proposed by
Dr. Rick Lippin
June, 1995
Revised 2005 after 9/11 and Katrina
Politically I am for a modified HR 676(Medicare for All) but with much more emphasis on prevention
My forecast is that if a DEM gets elected President in 08 we will indeed see major reform by 2010 or at the latest 2012.
Dr. Rick Lippin
Southampton, Pa
http://medicalcrises.blogspot.com
September 5, 2007 7:17 PM | Reply | Permalink
Of course health care is not market driven. It suits the medical/medicine business to talk in those terms as the presumption follows that market forces will eventually correct our problems. We're just suffering some temporary aberration.
The emperor with no clothes id that the whole model and goal of the insurance companies, HMOs, etc. lies closer to soviet-style command and control than any market oriented business. It must be the only industry in the US where the consumer and payer is not the customer.
Bring on universal health care, and without insurance companies.
September 5, 2007 7:23 PM | Reply | Permalink